Dating someone with spinal muscular atrophy
It is for families of children diagnosed with SMARD and may also be useful for healthcare and other professionals.
Genetic counsellors can also be contacted at a later date to discuss any further questions you may have.
As new treatments for SMA are being developed, they need to be tested in information about people affected by SMA.
The Registry also helps specialists gain more knowledge about the condition and the number of people affected by SMA.
The variety of genetic causes and use of different names can be very confusing but the distress).
Some children are very weak and show symptoms within the first 3 months of life.
These may include community nursing, , speech and language therapy, and dietetics.